Rare Diseases and Disorders Archives - Better Together

Chronic illness, invisible illness, rare diseases and disorders.

25 Things People with Debilitating Fatigue Wished You Knew

25 Things People with Debilitating Fatigue Wished You Knew

Remember those dreams you have had, where it seems like you are walking around under water?  Everything moves in slow motion and the weight against your limbs…

Mast Cells in the Summertime

Mast Cells in the Summertime

Ahhh…summer!  The season we, in the Midwest, wait for all year long…UNLESS YOU HAVE MAST CELLS BEHAVING BADLY!   There are so many traditions, foods, activities and holidays that…

If You Think You Don’t Need to Know About Hidden Disabilities, This Article is for YOU.

If You Think You Don’t Need to Know About Hidden Disabilities, This Article is for YOU.

If you have read any of my previous articles, you know I can get up on a soapbox about stuff.  I am pretty darned laid back by nature, but…

4 Tips for Making Peace with Your “New Normal”

4 Tips for Making Peace with Your “New Normal”

I have to admit, life has thrown me some curveballs.  Sometimes it has been things working out differently than I had “planned” (and in truth, I don’t…

More Effective Ways to Advocate for Your Loved One

More Effective Ways to Advocate for Your Loved One

The dictionary defines an advocate as “a person who speaks or writes in support or defense of a person or cause; a person who pleads for or…

28 Simple Ways to Address Stress

28 Simple Ways to Address Stress

Sometimes, too much of a good thing, is not a good thing.  That is the case for a powerful little chemical our bodies make called Cortisol.  Don’t…

What in the Heck is Eosinophilic Esophagitis?

What in the Heck is Eosinophilic Esophagitis?

Just saying Eosinophilic Esophagitis is a mouthful.  The funny thing is, I heard this term about 5 years before I needed to when an acquaintance mentioned she…

3 Things That Make Me Want to Wring the Doctor’s Neck (Figuratively.  Sort of)

3 Things That Make Me Want to Wring the Doctor’s Neck (Figuratively. Sort of)

Chronic illness is tougher than tough.  Throw in a rare disorder or two and that is a whole different beast. There are so many things that are…

Guest Interview:  Being a Mom to Autistic and Sensory Kids

Guest Interview: Being a Mom to Autistic and Sensory Kids

I am so thankful to my friend, for taking the time to answer some questions for me, and in doing that, we can all get a peek…

Sarcoidosis:  The Ring Taker

Sarcoidosis: The Ring Taker

I would not consider my husband a cautious man.  He worked construction for 30 years and although there were numerous warnings and horror stories of other construction workers…

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